- Medical Daycare.
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eleanorruby
- November 12th, 0:03
I’m sitting around with a needle in my arm - well, not a needle, a tube - and thinking there’s something I should be doing. Not in general. Not with my life. Something I should be doing right now. Some errand I could be running, some important decision I could be making. I’m already doing homework while being checked in to medical daycare for the next four hours; what more do I want from myself? The answer of course is as much as I could possibly give. I want myself to give and give and give, and I want nothing to hinder that generosity ever, not even a tube in my arm or the slight flicker of my eyelids as I sit for yet another hour under fluorescent lights with barely anything to eat. What brought me here is not my fault and I don’t believe in God, but every once in a while, mostly at moments like this, I succumb to feelings of victimhood. Clearly, the fact that I’m only twenty-four years old and I need to go for monthly intravenous drug treatments means that I’m being punished for a crime I did not commit. Clearly, because what else could it mean? The other options are too scary, so I tend to go the religious route, at least for a couple of minutes per month, which is the maximum amount of “Why me?” bullshit my brain can handle. Still, here it is again. And now that I’m actively acknowledging its presence, it’s gone.
I know I’m not being punished. I’m here because I have a chronic illness of unknown origin, and this is how we’re dealing with it (“we” in this case being myself and my gastroenterologist) -- monthly infusions of a drug called Remicaid, believed to block inflammation before it has the chance to cause any problems. And so far, it appears to be working. It is problematic to sit around for this long without much to do, though. Especially when the setting is a hospital. It breeds thoughts of life and death and God and God knows what else; it can’t help it. For me, the very smell of a hospital sends me back to the night I looked into the mirror and saw myself as a skeleton staring back at me, moving as I moved, wondering why I hadn’t noticed when a large part of me slipped out the door. It wasn’t just that. It was the way the light hit my face. It was foreign but familiar. Even as I was living in that moment, it seemed like I had already been there, and I was simply remembering what had happened. I wondered if I’d already died and this was what death was, a series of memories of what it had been like to be alive; in my case, what it had been like on the way to death, the moment when I first realized where I was headed, that I could die and would die and there was nothing I could do about it. Except I wasn’t dead. I kept thinking new thoughts, wondering if I still had anything left in me, and it was in that wondering that I realized that I did. What was left of me was standing right here and would now head back to the hospital bed, get some rest, and in the morning, start searching for where things went wrong. The smell of a hospital is always the same, a too-clean smell. A smell of white walls, if white walls could have a specific smell. A smell of loss. Of goodbyes and hellos. Of latex and disinfectant and detergent and bland food. My eyelids flicker.
I have more reading to do.